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Videos
Web
Watch :3
01:34
Connecting Rare Disease Patient Communities and Advocacy Groups
91 views
•
5 years ago
PCORI
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05:18
10 Tips for Newly Diagnosed Rare Disease Patients and Families
8.2K views
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5 years ago
National Organization for Rare Disorders (NORD)
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02:33
Identifying patients for rare diseases
725 views
•
5 years ago
IQVIA
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04:44
How Rare Disease Patient Groups Can Work With Researchers - Introduction
29 views
•
8 years ago
RareBeacon
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07:05
How To Manage A Small Rare Disease Patient Group - Introduction
53 views
•
9 years ago
RareBeacon
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57:10
Rare Diseases are Not Rare – A Training on Rare Disease Resources
2.6K views
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2 years ago
Network of the National Library of Medicine [NNLM]
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01:28
The Importance of Advocacy Groups for Rare Disease Patients
64 views
•
6 years ago
CheckRare
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50:20
Documentary on Rare Diseases "Day by Day"
181K views
•
9 years ago
Rijetke Bolesti
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01:12:41
Congressional Caucus Briefing [September 10, 2024]
278 views
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2 days ago
EveryLife Foundation for Rare Diseases
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04:26
Patients Matter: How Rare Disease Patients Can Move Scientific Discovery Forward
3K views
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4 years ago
U.S. Food and Drug Administration
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57:24
Natural History Studies for Rare Diseases
73K views
•
8 years ago
U.S. Food and Drug Administration
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19:58
How To Manage A Small Rare Disease Patient Group - Speaker 1
46 views
•
9 years ago
RareBeacon
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04:09
Medical Pioneer: First Patient Receives Unique Rare Disease Therapy Developed at UC San Diego
1.7K views
•
4 years ago
UC San Diego Health
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49:48
Building a Patient-Driven Movement: The rare disease community bands together for a fighting chance
2.4K views
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1 year ago
Katie Couric
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25:56
How To Manage A Small Rare Disease Patient Group - Speaker 3
53 views
•
9 years ago
RareBeacon
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18:14
How To Manage A Small Rare Disease Patient Group - Speaker 4
44 views
•
9 years ago
RareBeacon
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09:42
This Young Man Is One Of Two People In The World Coping With A Rare, Nameless Disease | NBC News
8.6M views
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5 years ago
NBC News
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17:58
Introduction to Rare Disease Patient Registries - Speaker 2
144 views
•
7 years ago
RareBeacon
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19:19
How To Manage A Small Rare Disease Patient Group - Speaker 2
26 views
•
9 years ago
RareBeacon
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21:35
How Rare Disease Patient Groups Can Work With Researchers - Speaker 4
22 views
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8 years ago
RareBeacon
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